Alopecia Areata Registry

The National Alopecia Areata Registry is sponsored by the National Institute of Health (NIH) and National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS).  The goal of this comprehensive nationwide registry is to collect data, both genetic and environmental, on as many people with alopecia areata as possible.  The data may then be used by researchers and scientists to determine the underlying genetic and environmental causes of alopecia areata.  
Tier 1 of the registry involves filling out a short on-line form.  Once a registry committee has reviewed this on-line form, registrants may then be asked if they are willing to participate in Tier 2.  Tier 2 participation is voluntary and involves completing a more extensive form and a single visit to the University of Minnesota (or New York, Denver, San Francisco, or Houston) for a dermatologic exam and blood draw.  For the University of Minnesota location, Dr. Maria Hordinsky performs the dermatologic exams and is the primary research coordinator.
 
For a more detailed explanation of the registry, and access to the short on-line form,
please click on the following link to the National Alopecia Areata Registry homepage.

http://www.alopeciaareataregistry.org/

Also, please feel free to contact Chelsy Jungbluth for additional information regarding the National Alopecia Areata Registry.

Chelsy Jungbluth
Research Assistant
Department of Dermatology
University of Minnesota
(612) 625-9338
aaregmn@umn.edu